Our Promise to Nicholas
Our grandson, Nicholas Dainiak, has been a camper at Joe's Pond since he was 2 months old.
In May he will be 7 years old and looks forward to more visits. Sliding down Fillion's hill in the
winter and swimming and playing in the brook in the summer. Riding on the boat to the play ground
and getting ice cream at Hastings Store is always a must. Pumping water at the pump and riding
in the cart on Mom's bike. Burt Frye gave him a wonderful ride through the woods with his
horses and buggy last summer. Nicholas laughed so hard when the horses tooted!
Nicholas was diagnosed with a fatal brain disease called Batten Disease at five years old.
Two years ago Nicholas was running in football and soccer, spoke clearly and was no
different than his friends. Nicholas is now completely blind, uses a walker to get
around, slurs most words, dementia has started and will eventually take his life at a young age.
This disease can be cured today if only there were enough funding. Our family is working hard
to raise money to help Nicholas and many other children like him. You can make a difference
in these children's lives too. Visit our website: www.OurPromiseToNicholas.com
The joy that we have with our children and grandchildren can be fleeting. We all hope to
extend the times of wonder with our loved ones. Our grandson and other children with Batten
Disease need help in their struggle so that they may live and grow and enjoy the many special
times with their families that can often be taken for granted.
